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Welcome to the Biliary Atresia Awareness & Research website.

Biliary Atresia is a rare, life-long and life-threatening childhood liver disease that affects 1 in 16,000-20,000 infants shortly after birth. There is no known cause and no cure. This disease is not hereditary. In order for infants to survive they must undergo a major life-saving operation called the Kasai Procedure shortly after diagnosis, this operation is used to hopefully avoid a Liver Transplant, but in the majority of cases the Kasai Procedure fails. Therefore Biliary Atresia is the leading cause of liver transplantation in children as the majority of those diagnosed with BA end up needing a liver transplant. A liver transplant is not a cure, it too brings its own life-long problems. Those diagnosed with this disease will be in and out of hospitals all their lives having operations, procedures, tests and scans to monitor their disease and ultimately keep them alive.

Biliary Atresia Awareness & Research (BAAR) is a Non-Profit Organization founded in February 2012.

BAAR aims to accomplish the following 3 things:

  • Firstly, increasing awareness of the symptoms by providing information to front-line health professionals such as doctors, midwives, health visitors as well as new parents, mom & tot groups or schools. The sooner a diagnosis is made, the more chance of a successful outcome, reducing the loss of infant lives.
  • Secondly, reducing the stigma and promoting organ donation. More children are now surviving into adulthood before requiring a transplant. Therefore, increased understanding from the general public is needed to recognise that not all cases of liver disease and liver transplantation are the result of lifestyle choices.
  • Thirdly, raising funds – initially proceeds will be used to further raise awareness. Excess profits from the awareness activities of B.A.A.R will be forwarded to the appropriate research centres in discussion with the BA specialist at BC Children’s Hospital, for the furthering of research into the cause and hopeful cure of Biliary Atresia.

 

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To Download a copy of our hand-out Pamphlet –  Biliary Atresia Leaflet